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News Please help spread the word...

Discussion in 'Off Topic - All other stuff here' started by Archie, Mar 3, 2015.

  1. Archie

    Archie Eternal tinkerer

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    Hi Everyone,

    I would like to ask that, if you could, you please share the following website on your social media platforms (Facebook / Twitter / G+ etc)

    http://www.chloesaxby.com.au

    Sadly, Chloe, has a terminal disease, Vanishing White Matter Disease (VWM) that is so rare only 4 people in Australia have this condition and only around 200 around the world. Chloe is 6 and her life expectancy is between 10 and 13 years.

    I am involved because they are a close family friend and I donate my time to create and host the website for them, among other local fund raising events.

    We are actively raising funds to help support Chloe, but that is not the purpose of this post, it's not a money grab, I just want people to spread the word. I guarantee unless you know someone with VWM you have likely never heard of it, and because it is so rare its very hard to bring it into the mainstream.

    A massive thank you to the board Admins for letting me post this - You will notice the forum was renamed to just "Off Topic" to allow this post. Thank you!

    Regards,

    Archie.
    • Like Like x 2
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    Archie, Mar 3, 2015
    #1
  2. noorbeast

    noorbeast VR Tassie Devil Staff Member Moderator Race Director

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    Done!
    • Like Like x 1
    noorbeast, Mar 4, 2015
    #2
  3. Archie

    Archie Eternal tinkerer

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    Just a "bump" so it's above the SPAM :)
    • Like Like x 1
    Archie, Mar 4, 2015
    #3
  4. GIB SimRacing

    GIB SimRacing Active Member

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    Top work @Archie !!!
    I don't know the little girl or anybody with this illness, but I would like to thank you for offering your time and help to other people.:thumbs
    • Agree Agree x 1
    GIB SimRacing, Mar 4, 2015
    #4
  5. Archie

    Archie Eternal tinkerer

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    Thanks @GIB SimRacing - I hate seeing this family struggle, and I don't have two pennies to rub together at the best of times, so I can only give my time and support them as best I can through the website and spreading the word as much as possible.

    Thanks everyone who has spread the word :thumbs
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    Archie, Mar 4, 2015
    #5
  6. kanuk

    kanuk If it ain't moving, it ain't simulating...

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    The word has been spread Archie and god bless.... I am a father and I cannot wish this upon anybody. Thank you for bringing it to our attention....
    kanuk, Mar 5, 2015
    #6
  7. Archie

    Archie Eternal tinkerer

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    Same @kanuk - My son is the same age as Chloe and my daughter is 4. My brain simply won't let me even contemplate being in the situation that Chloe's family is in. As a friend to them, and as a father, I feel compelled to do all I can to help them...
    Archie, Mar 6, 2015
    #7